Friday, November 28, 2008

An Eventful Thanksgiving

Well, we had a great Thanksgiving with the in-laws, it was small at our house and we watched movies after having dinner. The fun started around 10pm when I was laying with Evan in our bed. We were back to back when he started crying like he was in pain and I look at him and his eyes are doing the jumping thing and he is staring all the way to the left and knew immediatley that he was having a seizure, so I yell at Rudy to get in the room. I mention that we need to get the Diastat just in case and he say well it has not been 5 minutes it is only 10:09, so then Evan is still crying and staring to the left with his head turned to the left, it is like he was aware of what was going on but could not control his body. So then he starts with the gagging and vomitting and we get the Diastat. I just froze because I was not sure if I should give it to him and we were coming up on 8 minutes now so I decided just to call 911 and while I was on the phone with them he started coming out of the seizure. We brought him out to the couch to wait for the paramedics who arrived in a pretty decent amount of time. They took his vitals etc. and we were transported to Sutter Memorial Hospital, Evan was starting to return to his normal self and shortly after we arrived he fell asleep and woke up when they put the IV in but was asleep again a minute or two later. They did his blood work and found that his Depakote level was low so we are increasing his dose again and have to follow up with the dr. We left the ER around 3am, and I can't sleep even though I am really tired.
All in all, it was a good experience with the paramedics and the hospital although it was a long wait as usual. I think I know now that I should administer the Diastat and then call 911 if it does not stop or if he has other abnormal symptoms. In this case he was fine afterward and we probably did not need to go to the hospital but we were scared and unsure of what to do because has never had a prolonged seizure like that before and this whole thing of starting out with the eye movements and then progressing to the vomitting/gagging is a new development for us.
I think what bothers me the most is that his seizures are progressing and doing different more serious things even with the medication. I don't know if I will ever get used to dealing with the stuff we deal with because of Evan's special needs. So I have to say that I am thankful that my son is OK, that we are home and not in the hospital, for my husband and also my in laws who are watching Gabriel so we could deal with Evan. Speaking of Gabriel I wonder how he felt seeing his brother wheeled out of the house into an ambulance. Rudy said he seemed fine but it had to have freaked him out a bit. I will talk to him later today when I pick him up from Grandmas.
Update*** I spoke with Grandma and she said Gabriel was really quiet last night and she asked him what was wrong and he said "my brother" so he was really scared and worried. So much for an 8 year old to have to deal with, it is a lot for anyone to have to deal with really. I don't really know how Evan is going to be since he is still asleep. I am taking advantage of the time to just get some cleaning done and reflect on what happened and what I would do differently next time. Rudy and I talked about having a plan and basically we will give the Diastat at 5 minutes and then call 911 if it does not stop. I think we will be more calm next time and follow this plan that we have in place. Pretty crazy to be thinking I will be more calm the next time I have to call 911 for my son, but this is just part of the special needs world, I knew that Evan had a higher risk of having seizures and I knew that there would be the chance that I would have to call 911 for him. Knowing all this and talking with friends, hubby and Dr about it certainly did not make it any easier to do and I did panic a little bit when it was actually happening. As it usually is with Evan that just when I think we are going down a smoother path we get a big bump in the road, but we will get over this to. Rudy said he hopes there is not a next time and I said I am sure there will be, we have a special needs child who has only been having visible seizures since January and here it is only in the first year and we have had to call 911. While we can hope that it does not happen again we are now prepared with our plan of action. Enough talk about this incident. I am going to go clean up my house and check on my little boy.

3 comments:

The Bjurstrom Family said...

I'm so sorry that you guys had to experience the seizure and not knowing what to do. Even from the numerous times I've called for Dylan sometimes I "freeze". I don't that there will be any sort of normalcy when it comes to calling 911. I wondered how Gabe was feeling. I know Brianna was pretty little when Dylan had to be transported. I'll be thinking of you guys. Let me know if you need anything:)

Melanie said...

I am certain you did a great job under the circumstances. I am sure I would flip out! Daniel has his seizures but they seem "mild" compared to what you described. But because Evan and Daniel share the same diagnosis I am sure that we will eventually be experiencing them. For the diastat we were always told after 3 minutes give the med and immediately call 911 just in case he has a bad reaction to the meds or if the seizure continues. We're thinking of you guys, and I hope all is well

Justinich Family said...

Well, this is the first time he had one this long and the first part was new. I hope that Daniel does not have worse seizures but I think we both understand that it is a big risk for our kids.